Presenting you with the official 2016 SMS Awareness video for the #SeeMySpecialness campaign. P.S. Thank you to ALL of our... Read More


Ask Me What It Is- A VIDEO of families from around the world talk about Smith-Magenis Syndrome from their personal point... Read More

Damian’s Story

Damian was our first child so as first time parents, my wife and I really had no idea anything was... Read More

Jeremy’s Story

Jeremy was diagnosed with SMS at the age of 19 months. After many months of testing and seeing a multitude... Read More

Sienna’s Story

Sienna Rose was diagnosed with Smith-Magenis Syndrome in June of 2006 when she was just 4 weeks old after undergoing open... Read More

The Longman Family

A Video from the Longman Family of Florida and how SMS impacts their lives.