Improving Lives Through Research

We fund only the best, most comprehensive SMS research projects along with the best and brightest scientists focused in this area. Through this science, SMS Research Foundation is committed to improving the lives of children around the world.

Our Research
What is SMS?

What is SMS?

Smith-Magenis Syndrome is a complex developmental disorder that affects multiple organ systems of the body. The disorder is characterized by a pattern of abnormalities that are present at birth (congenital) as well as behavioral and cognitive problems.

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Our SMS Research

Our Research

It is our goal to advance the scientific understanding of this rare syndrome so that effective treatments can be developed to improve the cognitive delays and behavioral issues of those living with SMS.

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1 in 25,00 Live Birthds

1 in 15,000 births in the US are affected by SMS.

Identified only in 1982, the SMS Research Foundation is working tirelessly to fund research to improve the treatment options and lives of SMS children.

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Who We Are

The SMS Research Foundation supports research to improve the knowledge and understanding of Smith-Magenis Syndrome.

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It’s your support that keeps our life-changing research programs going, and brings hope to families facing this challenge.


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Let us know who you are, share your story, or just ask a question.

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